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The U.S. Department of Energy (DOE) and the National Institutes of Health (NIH) devoted
3% to 5% of their annual Human Genome Project (HGP) budgets toward studying the
ethical, legal, and social issues (ELSI) surrounding availability of genetic information. This
represents the world''s largest bioethics program, which has become a model for ELSI
programs around the world.
Fairness in the use of genetic information by insurers, employers, courts, schools,
adoption agencies, and the military, among others.
Who should have access to personal genetic information, and how will it be used?
Privacy and confidentiality of genetic information.
Who owns and controls genetic information?
Psychological impact and stigmatization due to an individual''s genetic differences.
How does personal genetic information affect an individual and society''s
perceptions of that individual?
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